I am really struggling at the moment
With all the hype around Coronavirus
It is so hard to know what to do for the best
I want to be rational and believe that we will be okay
That it is no worse than the flu
But we do not close schools when someone has the flu
The Government does not announce new daily numbers of people with flu
To be honest I worry about flu too
I worry about everything
I suffer with health anxiety
Which is part of my much larger umbrella of anxiety
That arches over everything I am and do
Anxiety is exhausting at the best of times
And at the moment I am really struggling
Health Anxiety
I have never been very good with ill people
I have always struggled with vomit
My own and other people’s
Since becoming a mummy my ability to deal with sickness has improved
But mostly it falls to David
Who is on the whole calmer
And much less squeamish than me
My aversion to vomit though is not what I want to write about
My health anxiety began when we started IVF
When falling ill could end a cycle
It got worse when Esther and William were born at just 27 weeks
They spent 59 days in NICU and SCBU
I have never washed my hands so much
And used so much antibacterial gel as during their hospital stay
It got worse again when we brought our babies home
And the responsibility for keeping these tiny vulnerable babies well fell to me
I wrote a letter to family and friends outlining very strict guidelines for visiting us
And went into hibernation for the first six months of having the twins home
It was a lonely time
I was scared of everyone who sneezed near us
But my strict rules and regimes kept our tiny preemies from being readmitted to hospital
I do not regret anything that I did in their early days
But I do regret how my actions may have made others feel
My beginning to parenting was not the fairytale I had hoped for
And sadly Esther and William’s premature birth was not the worst thing to happen
My health anxiety peaked when my healthy nine month old baby died in her sleep
For no reason that anyone has been able to determine
I worry about the health of my living children all the time
I worry about my own health too
I worry about staying alive long enough
To see my children through their teens
And young adulthood
My age worries me
I will be 64 when Esther and William reach 30
By the time Edie turns 40
I will be 80!
That seems so old to me
I worry that I will not see my children marry
And I will be no use as a Grandmother
If and when that time comes
I really panic about my children’s health
I always have
But recently my anxiety has been steadily getting worse
I worry for Esther and William
As they approach ten years old
We are still uncovering the ways that their premature birth has affected them
ASD, ADD, SPD, dyslexia, dyscalculia
The lists go on and on
I worry A LOT about coughs and colds and viruses
Whenever William is ill it goes to his chest
When Bea is ill it goes to her tummy
Esther and William are still classes as having Chronic Lung Disease
As they needed oxygen support for so long after their birth
Something like a respiratory virus
Could be really serious for them
I am super strict with handwashing
And hand gel
The children
Especially Esther
Are very well trained
But I worry about Edie who licks tables and walls
And always has her hands in her mouth!
Sickness bugs terrify me
With four young children
Tummy bugs are not fun
And can seem neverending
My health anxiety presents in many ways people do not understand
Insomnia
Nightmares
I get quite jumpy around people who are obviously ill
I avoid going to places like soft play and indoor play or sports centres
If my children seem like they are coming down with something
I panic and over think everything
I get really cross when people publicly share their children’s sickness
Get very cross with people who do not follow guidelines for illnesses and quarantine
Most of the time no one would know any of the above was going on
I have got very good at hiding my feelings
I have got very good at carrying on carrying on
While my heart and head are racing and raging
Which is utterly physically, mentally and emotionally exhausting
If David’s poorly I really struggle
He is so rarely sick that when he is I get so scared
Think irrational thoughts, panic
I cannot help these reactions
I am not meaning to be anti social
I am not trying to be difficult
I have watched two of my children battle for their lives
Literally fight for breath
I almost died myself while carrying the twins
My baby died
And we thought we had lost Esther again when she had a febrile convulsion
You may think I am irrational
You may think I am silly
You may well think I should just get over myself
You may think I overreact
You may never understand
I hope you never do
I would not wish my anxious mind on anyone
I do not need you to understand
But until you have walked in my shoes
Please do not judge me
At least not out loud
Health anxiety can be overwhelming
Terrifying
All consuming
Sometimes I cannot see past keeping my children alive
Because the pain is still so raw
From losing Tilda
Almost losing my own life
Almost losing the twins
More than once!
I am irrational
I do overreact
I do over think
I know that I do
Perhaps you would too
If you were me?
Oh yes. This is me too. For very different reasons – but the end result is the same. I wake in the night from nightmares and bad dreams and when I finally do sleep, I wake in the morning with a headache so bad I can barely move – caused by the never ending tension in my neck, head and shoulders. I long for a day I can wake up without a body rigid with fear and anxiety, for a time when I can live in the ‘now’ and enjoy the moment without looking back at the past with sadness and forward at the future with fear and uncertainty. I don’t have an answer to all this but no, you are not the only one. x
I am so very sorry that you know how it feels x Lots and lots of love to you x It does help in a strange way to know that I am not on my own and people do understand x
I can identify so much with this! My 5 year old was a 30 week preemie conceived via IVF and everything you wrote was me before and after her birth. Even now I get jumpy and hypervigilent if I hear someone cough or sneeze in public. I try to reason my way out of it but it’s hard to silence the persistent “what if…” voice inside. Like you the current coronavirus issue is making it so much worse too. I can’t imagine how much the heartbreaking loss of your baby girl has heightened the anxiety for you but I do hear you and you are definitely not alone feeling this way x
Thank you so much for sharing your story x it does help to know I am not completely crazy and we are not on our own x