I am a mother of five beautiful children
With my husband I am raising only four of our babies
We lost our second daughter
Matilda Mae
To the stars
When she was just 9 months old
Living in Kent
We home educate our children
Ages 3, 6, 10 and 10
We learn through play and adventures
We learn through a shared love of books
We learn together
As a family
And within our home education community
Together we navigate life
With one of us always missing
We always remember that we are a family of seven
Mummy and Daddy
Two sunshines
Our angel
And two rainbows
With our sunshine and rainbows
We are #livingfortilda
Always searching for #edspireedventures
Navigating life after loss
Is not easy
Here I document our journey
Here I tell our story
This is where I tell my truth
Share my heart
My hurt
In the hope that our story
Will help others walking in similar shoes
Following a similar path
This is our story
jennie@edspire.co.uk
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Hi!
You have an amazing story & an amazing family.
We have twins too, also BG, now nearly 10 months, & who were ‘only’ 3 weeks premmie.
I call myself JallieDaddy & the twins are Jacob (Jake) & Eleanor (Ellie); together known as ‘Jallie’.
I’m looking forward to reading more of your story 🙂
Oh Hi
I have been looking at your blog today too! Must admit have not had time to read much yet but I am definitely going to as I love what I have read so far.
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I am email subscribed already. Love your blog and I’m sure anyone going through the whole NICU/SCBU experience will be greatly helped by it
Christina (Mum to Charlotte, born 27 wks +1) x
Thank you very much, that means a lot.
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I’ve subscribed too! I’m fascinated by your story.
I am a twin, 4 minutes older than my twin brother. My mum was started off early, but not by much at all. We were born on the 11th of September and due on the 18th so only a week early, but twin stories always fascinate me.
Your twins look adorable and I look forward to hearing all about how you are all getting on xx
Thank you. Have just been reading your blog and will follow you too x
Fantastic blog, now following you xxx
Thanks, following you too x
A really lovely blog. I’m following you (just realised that sounds a bit creepy, but you know what I mean!).
I do, and I am follwing you too x
Hi
I gave birth to Thomas at 25 weeks and 4 days. I would love to read your blog from the beginning – I have subscribed but it wont let me go to the first pages – am i doing something wrong?
I am sorry that you are having trouble. My fiance is fixing the problem as I type. In the meantime if you search for the post Labour Day you can read from the beginning by reading this first post and clicking next at the end. I hope that you find the blog helpful and if you have any questions then please do ask them. I know I did all the time when Esther and William were first born. Whereabouts are you? How old is Thomas now? I love the name Thomas by the way x
You might like this blog too. http://notevena.blogspot.com/
It is written by a Mummy of a 27 weeker who is now 2. Powerful and inspiring stuff to get you through the tough days x
Can I just interject that the early stories of William and Esther make me weep with the love and tenderness that Jennie writes with.
Oh thank you x x x x That means so much x
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I see you are raising money for BLISS – I am as well – a charity ball in Cheshire on 17th September! x
Just wanted to say Hi, a new follower here, I am mum to a 31 weeker and a 34 weeker, but mine are now 7 (8 in a few weeks) and 5 and god just writing that is scary about how time flies and how old they are but the prem experiene never leaves you I think. I am a big supporter of Bliss as well and found them invaluable in the early days x
Hi,
We have a lot in common! I am a mum of a 4 year old and 1 year old who also went through 8 rounds of ivf and am now lucky enough to have two. Amongst the mayhem I run a small TV production company called Dot To Dot Productions, we have made shows like BIG COOK LITTLE COOK, FUN WITH CLAUDE and GET SQUIGGLING for CBeebies and Disney. We recently decided to try our hand at Apps for 1-4 year olds. As an ex teacher I wanted to create something which was fun, but had subtle educational themes. We came up with a brand called NURSERY RHYME KARAOKE and within this have created TWINKLE TWINKLE LITTLE STAR (good Christmas App and great for getting your child to sleep) and OLD MACDONALD. Special needs children seem particularly receptive to it, although granny’s of 85 years old also enjoy recording their voice and playing it back! It would be great if you could take a look and may be review. I have lots of promotional apps to give away!
http://itunes.apple.com/gb/app/old-macdonald-nursery-rhyme/id482622791?mt=8
http://itunes.apple.com/gb/app/twinkle-twinkle-little-star/id482633439?mt=8
If you’d be happy to review please let me know if you’d like a code for the I Pad or I Phone.
Many thanks
Jo
This all sounds wonderful but I am afraid I am totally Windows based and have no iphone or ipad. Sorry x The apps sound fab though. And we do seem to have a lot in common x Thank you for taking the time to get in touch x
Hello Jennie, I work for Bliss. Can you contact me at nosg@bliss.org.uk please. Will explain more. Thank you
I wonder if you can help me? I think I was possibly a winner of a baby calendar at the end of July. I am sorry I didn’t see the post as I have been critically ill for the past year and have only just realised. I hope it’s not too late to claim.
Not too late – can you send me your postal address? x x x
Jennie this post is so full of hope and positivity for the future. You have had an incredible journey these past 5 years and the last few months have tested you and your family beyond comprehension. Your courage is amazing whether you believe that of yourself or not. I too hope and believe there is a bright future for you all. I will continue to follow your story as I do now. Lots of love, Helen xx
Hi Jennie, I’m Emma, relatively new to the world of Twitter and blogging. I remember seeing so many tweets regards your heartbreaking story, and was first made aware then of the community that exists in this blog sphere we all share. I am inspired by your courage, and that community. You shine light – as does your daughter Tilda. Thank you for continuing to be brave. I love the direction your blog is now heading and I really look forward to sharing it. PS BLISS is close to my heart too, my daughter Esme was born fighting suspected meningitis and was very sick initially. The SCBU staff will always be remembered. Emma
When I see all of that written down in black and white I feel so so privileged to have such an amazing friend. Lots and lots of love to you Jennie, this blog is such a credit to you all
xxxxx
I found your blog looking for family bloggers to review our new children’s tableware products. But I’ve been in tears after reading about you and your family and now it doesn’t seem so appropriate. I had premature twins 4 1/2 years ago and thankfully they’re now healthy and happy. I lost twins last year at 13 weeks and was devastated. So I can’t imagine how you feel after knowing your gorgeous girl for nine months and then having to be parted. My heart goes out to you. You’re so brave and amazing for sharing this journey. You’re an inspiration. x
Hi Jennie,
You are an incredible women. I pray for your successful future ahead. Enjoy your time with your family.
Hi,
just stumbled across your blog via my news feed. I too had ivf to concieve b/g twins born 33+1 weeks, then found out six months later i was expecting again naturally. My little girl is one one the 23rd, at times it can be like a military operation and even then it never goes to plan. But iam thankful for every moment, tear, smile etc. You are inspirational as a family, thank you for sharing. x
Jennie,
After reading your story, I just wanted to say once again that you are very brave, and you are an inspiration. Your children are lucky to have such a strong mummy. Mel
Hi I have been moved to tears reading your story and think you are an absolute inspiration….. My daughter Mabel was born 11 weeks early she is now 3 and supposedly meant to go to school on sept 2014, I am also an infant school teacher and even though Mabel has no specific learning delay we really want her to go to school when she would have done should she have been born on time… To me it’s a no brainer! Just wondered how you were getting on with delaying your twins?
From Mabel’s mum.
After reading your story I just wanted to leave you a message to let you know that I am saddened by your story but inspired by you. I had to have ICSI treatment too, and had a missed miscarriage at 7 weeks. Anyone having a ‘normal’ pregnancy might not have even known they were pregnant that early on but for us that child was already in our hearts and I felt as though the sky had fallen in. My rainbow babies (also ICSI) were born exactly one year later and they mended the break in my heart.
I look forward to reading more about your family, and wish you all the best as you await the arrival of your rainbow baby xx
Hi there,
Discovered your blog today, this page has reduced me to tears. I cannot imagine the heartache and pain you have experienced or the strength you must have within to have gotten through it. You are a truly inspirational woman (and family). Matilda Mae was a beautiful little girl and I’m sure your newest addition will be just as beautiful. All the best with your pregnancy and every second afterwards. As for me, I’m off to give the sleeping kids one more kiss goodnight… xx
Hi, THANK YOU for sharing Matilda Mae’s life with us! I’m a believer and follower of Jesus Christ and I be believe that with life’s trials we grow in faith of HIM but we also get strength. I’m fascinated by your incredible strength and courage! You and your husband have a beautiful family. I know that you will see Matilda again one day. The Lord is watching over your two babies! As for us, my husband and I started our family right away and the Lord blessed us with 3 healthy children (1999 a son, 2001 a son,& a daughter in 2003) and then we had a little miracle (born by emergency C-section) in 2007 another daughter she was born at 36weeks(my ob-gyn said she was far enough that she would be healthy and big enough) but to everyone’s surprise she only weighed 2# 15ounces. My husband and I were shocked. I didn’t have any health concerns during my pregnancy. I was only able to hold her for about 5 minutes before they took her away to Milwaukee. My little one was there about a month and they sent her home as soon as she gained 1#. It was a new experience for me other than the few times in the NICU I had never held a tiny baby like that before. The 1st year was rough she had breathing problems and we were in and out of the hospital and doctors office. But thankfully she is going to be 8years old this year and you can’t tell she was so small and healthy. I just wanted to share that with you. I’ll keep your family in my prayers and Thank You for being a loving Mommy to the children that the Lord has borrowed to you.
Hi,
I ended up in your blog because of the review on the trix tracks marble run. I’m 37, mother of a two and a half year old girl… and I still go check her every night before my husband a I go to sleep. Anyway, I just want to say that I am truly sorry that you and your family had to suffer such tragedy. It is not much, but I simply cannot leave without letting you know that I saw your story, and that I didn’t leave me indifferent. Good luck <3
A really lovely blog.
I love your story Matilda Mae was a darling baby. I loved her smile! I can see the heart break it brought you but you are doing really great with your children now—better than I could have. I think I am without the wisdom and will that you have in blogging and keeping on keeping on! I wish you and yours all the happiness in the world and may you have the best Christmas ever and Tilda Mae’s spirit be there with you all!
Love Patricia
Sending loving kindness your way, thanks for your honest and touching words 😀